Providing safe blood for patients with thalassemia and sickle cell anemia is one of the main objectives of the association. Through collaboration with relevant authorities in the Ministry of Public Health and Population, such as the National Center for Blood Transfusion and Research, specifically, and the National Center for Public Health Laboratories and other blood banks in hospitals, the association has been able to secure safe blood and its derivatives free of charge for patients. The association also contributes to organizing voluntary blood donation campaigns at universities, colleges, institutes, and other cooperating entities to support the stock of the National Center for Blood Transfusion.
Provision of Medications
Since its establishment, the association has been striving to provide essential medications such as iron chelation drugs (including deferoxamine injections, deferasirox tablets, and deferiprone), hydroxyurea treatment for sickle cell anemia patients, folic acid, and other supportive medications, antibiotics, pain relievers of all types, and intravenous solutions to maintain the patient’s health and prevent deterioration. Necessary vaccines are also prescribed to enhance the patient’s immunity and protect them from certain diseases. These medications are required by patients for life, and their provision necessitates the attention of official authorities, as well as support from organizations, institutions, and commercial companies, reflecting the association’s role and social responsibility towards patients.
Diagnosis
Initially, patients with thalassemia, sickle cell anemia, hemoglobin disorders, and others require clinical examination and laboratory tests to confirm the type of disease, for registration purposes, and to monitor their health status periodically. This includes general blood tests, biochemical tests, serology, viruses, hormones, and other diagnostic procedures such as ultrasound, X-rays, CT scans, and MRI. These tests are essential for prescribing treatment and providing timely medical intervention. Some of these services are available at the treatment center, while patients are referred to diagnostic centers and public and private hospitals for services not available in the treatment center, through coordination with these institutions to collaborate in supporting this group of patients.